Notice: Special Appeal to ALL members

We all know these are tough economic times for everyone AND for non-profit organizations serving the needs of their members. Second Chance is no exception. Please respond as generously as you can when you receive our Special Appeals letter so we can continue to support members in need with our grant program in this especially challenging time. Now you can also make your donation on-line with PayPal or any major credit card. Just use the Special Appeals link on the right column of this page to access that service

Final Cash Raffle winners announced

Congratulations and thanks to the following who supported Second Chance in our 2017 cash raffle that was drawn today (May 7th, 2017):

  • 4th prize ($100) Dr. Glenn Friedman
  • 3rd prize ($100) Ellwood Clark
  • 2nd prize ($150) Sylvia Golden
  • 1st prize ($350) Ralph Pepe (Ralph generously donated back a portion of his winnings)

Our Chairman, Jim Bullard, announces closure of Second Chance

Second Chance chairman, Jim Bullard, released the following notice of action taken at our recent board meeting:

 

Date: 04/09/17
To: Transplant Recipients & Caregivers

On behalf of the Board of Directors, it has been a pleasure being a part of the Second Chance Team. This team includes; the Medical team, Heart transplant recipients, and CaJim Bullardregivers. As we all are aware, the mission of this team has been and will always be lifesaving. Personally, if it was not for this team, I would have left this world years ago. Regardless of the decision recently made regarding the Second Chance organization, I am committed to give time to those in need of it.

Following our deep concerns and discussions over multiyear declining Celebration of Life attendance with minimal response to this year’s event, the board decided to cancel the May 7th annual dinner event. Advance payments for ads and reservations are being refunded, while the already committed cash raffle will proceed with the drawing as scheduled for May 7th.

With the loss of that patient grant fund support revenue and the closing of the Hahnemann Hospital heart transplant program, Second Chance chapter activity is down from four to one active chapter still having meetings. Even that chapter engaged in two major events a year vs. our original 11 support group events per year program. It became clear that we are no longer able to effectively carry out our grant program and patient support mission.

After being operational for 30 years, the board faced the very painful but inevitable decision to close the Second Chance Heart Transplant support Group, Inc. effective June 30, 2017. Per the dissolution provision of the by-laws, the board directed that the remaining assets of the organization will be donated to the Gift of Life Transplant Family House, to help transplant patients and families that stay there even when they cannot afford the daily charges.

This move is yet another sign of the changing times where generational needs of society are not coming out to meetings as in the past, thus Second Chance is following the example of many other groups who have faced similar tough decisions for reasons of dwindling financials and membership engagement.

Please reach out to me if you need additional information.

Sincerely,

Jim Bullard
chairman, Second Chance Heart Transplant Support Group, Inc.
732 463 3927 (H)
732 216 6894 (C)
732 463 3926 (Fax)
bullard.james@gmail.com

 

 

Hello world!

Welcome to the on-line home of 
Second Chance Heart Transplant Support Group, Inc. 

(Note: the web site address: “SCHTSGI.com” comes from using the first letter of each word in that corporate name…)

Print

We are a local heart transplant support group of heart transplant recipients in the general area of the region known as the Delaware Valley.  While our 800+ members have spread far and wide, most come from the Philadelphia centered area that includes Delaware, Southern New Jersey, and Eastern Pennsylvania.   Anticipating your question, yes, you have to have had a heart transplant – or be married to one who has – to become a member, so there really are that many recipients in this local area, and oh so many more!  That large number is mainly due to the fact that there are so many heart transplant programs in this area – seven if you count CHOP, Hershey and DuPont (in DE).

Read more about our organization in the ABOUT page on this site, both our long history (dating back to the mid 1980’s, the “dawn” of today’s successful heart transplant surgical process ) and our mission of support and financial aid to member patients in need.  To date here in 2016, Second Chance has given out over $670,000 in patient grants over those years.  If you are in financial need, ask your transplant social worker at one of our chapter supported heart transplant hospitals (Ie., Temple, Hahnemann, Jefferson or Hospital of the University of PA) who can help you with that funding request.

To print a copy of our informational brochure, click on: SECOND CHANCE BROCHURE rev 03282016

So read all about us here, and consider joining to add your own support to this very unique group who truly are giving from their hearts and are “heart gifted” owing their lives to a donor family’s gift and the modern miracle of heart transplantation in the hands of amazing medical professionals in those many centers.

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Excellent Medicare educational reference resource:

Grace Earl, PharmD, BCPS,  Department of Pharmacy Practice and Administration, Philadelphia College of Pharmacy, University of the Sciences

is our educator for the Medicare and Medicaid advice and council each year at this time.  You can see her excellent reference resource at:

Medicare and Medicaid updates & advice (click here for her handout: medicare_sp17-second-chance)

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March ’16: Temple chapter long time president, Rich Ford, turned over that role to Laverne Clark and was recognized for his many years of service by Temple hospital leadership:

Rich ford 1

Rich ford 2

 

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Celebration of Life 2017: Sunday afternoon, May 7th – cancelled due to lack of support (registrations)

Celebration of Life 2016: Sunday afternoon, May 15th – see video of the event (<– click here)

For 29 years now, Second Chance has been hosting this amazing event, a celebration of life post heart transplant. Each year hundreds of heart recipients and their family, supporters, health professionals and friends gather for fun, music, dancing, socializing and just living life to the fullest together.

Past Celebration of Life event videos available for viewing:

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Have you heard?  There is a new heart allocation process being proposed to the UNOS/OPTN board.  If passed this would totally replace the system we all know so well with a new set of listing statuses aiming to improve overall results of reduced mortality on the wait list and longer post-transplant survival.   To read the proposal and add your comments go to https://optn.transplant.hrsa.gov/governance/public-comment/adult-heart-allocation-changes/ – the following will help understand the overall picture:

Executive Summary

The Thoracic Organ Transplantation Committee (the Committee) proposes modifications to the adult heart allocation system to better stratify the most medically urgent heart transplant candidates, reflect the increased use of mechanical circulatory support devices (MCSD) and prevalence of MCSD complications, and address geographic disparities in access to donors among heart transplant candidates. Though changes to the adult heart allocation system implemented in 2006 were successful, candidates with disparate waiting list mortalities are currently grouped together in the most urgent classification, status 1A, causing waiting time to be the primary factor in stratifying candidates. Additionally, the current geographic sharing scheme creates potential inequities in access to transplant for the most urgent candidates.

The Committee proposes two significant changes to the adult heart allocation system:

  1. Develop additional urgency stratifications based on relative waiting list mortality rates for all adult heart candidates
  2. Modify the geographic sharing scheme to provide the most medically urgent candidates access to donors from a broader geographic area

The Committee’s proposal is supported by modeling analysis performed by the Scientific Registry of Transplant Recipients (SRTR). The proposed changes are expected to lower waiting list morality rates overall and achieve higher transplant rates for the most medically urgent candidates without increasing overall post-transplant mortality rates or increasing waiting list mortality rates for candidates in lower urgency statuses.

Jan 28th: UNOS new Heart Allocation proposal explained:
On January 28th, UNOS hosted an on-line webinar with Dr. Rogers explaining the proposal with slides, followed by our own Jim Gleason adding the patient perspective for the gathered reporters.  Several articles listed below were a result of that event  (see links to news articles and to the news media presentation below)
(Note: the YouTube video of that news event actually begins at the 3:00 minute mark with Dr. Rogers’s slides, then TRIO president and UNOS board member, Jim Gleason, gave his remarks at 25:00 minute mark (for 5 minutes) followed by Q&A
> UNOS News event video: https://youtu.be/93E9v5_ULxw
> Pittsburgh Post-Gazette article: http://www.post-gazette.com/…/Heart-do…/stories/201601280012
> TRIBLive article: http://triblive.com/…/admi…/9873113-74/heart-unos-transplant

 

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Click below to access these inspiriting and educational on-line resources:

(Stay tuned for future resources coming each month…)

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Contacts . . .

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