Notice: Special Appeal to ALL members

We all know these are tough economic times for everyone AND for non-profit organizations serving the needs of their members. Second Chance is no exception. Please respond as generously as you can when you receive our Special Appeals letter so we can continue to support members in need with our grant program in this especially challenging time. Now you can also make your donation on-line with PayPal or any major credit card. Just use the Special Appeals link on the right column of this page to access that service

Hello world!

Welcome to the on-line home of 
Second Chance Heart Transplant Support Group, Inc. 

(Note: the web site address: “SCHTSGI.com” comes from using the first letter of each word in that corporate name…)

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We are a local heart transplant support group of heart transplant recipients in the general area of the region known as the Delaware Valley.  While our 800+ members have spread far and wide, most come from the Philadelphia centered area that includes Delaware, Southern New Jersey, and Eastern Pennsylvania.   Anticipating your question, yes, you have to have had a heart transplant – or be married to one who has – to become a member, so there really are that many recipients in this local area, and oh so many more!  That large number is mainly due to the fact that there are so many heart transplant programs in this area – seven if you count CHOP, Hershey and DuPont (in DE).

Read more about our organization in the ABOUT page on this site, both our long history (dating back to the mid 1980’s, the “dawn” of today’s successful heart transplant surgical process ) and our mission of support and financial aid to member patients in need.  To date here in 2016, Second Chance has given out over $670,000 in patient grants over those years.  If you are in financial need, ask your transplant social worker at one of our chapter supported heart transplant hospitals (Ie., Temple, Hahnemann, Jefferson or Hospital of the University of PA) who can help you with that funding request.

So read all about us here, and consider joining to add your own support to this very unique group who truly are giving from their hearts and are “heart gifted” owing their lives to a donor family’s gift and the modern miracle of heart transplantation in the hands of amazing medical professionals in those many centers.

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Our next Board meeting will be:
Monday evening, April 25th 2016 at the Gift of Life offices starting at 6:30pm for light dinner and meeting at 7pm sharp
Register with Jim Bullard (see below) for conference line details

… usually held at the Gift of Life Donor Program offices:

Gift of Life Donor Program

401 North 3rd Street, Phila, PA 19123-4101

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(All attendees please register with Charman, Jim Bullard, to attend this meeting…
Jim Bullard phone: 732-463-3927 e-mail: bullard.james@gmail.com )

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Have you heard?  There is a new heart allocation process being proposed to the UNOS/OPTN board.  If passed this would totally replace the system we all know so well with a new set of listing statuses aiming to improve overall results of reduced mortality on the wait list and longer post-transplant survival.  Now that proposal is open for public comment and YOU are invited.  To read the proposal and add your comments go to https://optn.transplant.hrsa.gov/governance/public-comment/adult-heart-allocation-changes/ – the following will help understand the overall picture:

Executive Summary

The Thoracic Organ Transplantation Committee (the Committee) proposes modifications to the adult heart allocation system to better stratify the most medically urgent heart transplant candidates, reflect the increased use of mechanical circulatory support devices (MCSD) and prevalence of MCSD complications, and address geographic disparities in access to donors among heart transplant candidates. Though changes to the adult heart allocation system implemented in 2006 were successful, candidates with disparate waiting list mortalities are currently grouped together in the most urgent classification, status 1A, causing waiting time to be the primary factor in stratifying candidates. Additionally, the current geographic sharing scheme creates potential inequities in access to transplant for the most urgent candidates.

The Committee proposes two significant changes to the adult heart allocation system:

  1. Develop additional urgency stratifications based on relative waiting list mortality rates for all adult heart candidates
  2. Modify the geographic sharing scheme to provide the most medically urgent candidates access to donors from a broader geographic area

The Committee’s proposal is supported by modeling analysis performed by the Scientific Registry of Transplant Recipients (SRTR). The proposed changes are expected to lower waiting list morality rates overall and achieve higher transplant rates for the most medically urgent candidates without increasing overall post-transplant mortality rates or increasing waiting list mortality rates for candidates in lower urgency statuses.

Jan 28th: UNOS new Heart Allocation proposal explained:
On January 28th, UNOS hosted an on-line webinar with Dr. Rogers explaining the proposal with slides, followed by our own Jim Gleason adding the patient perspective for the gathered reporters.  Several articles listed below were a result of that event  (see links to news articles and to the news media presentation below)
(Note: the YouTube video of that news event actually begins at the 3:00 minute mark with Dr. Rogers’s slides, then TRIO president and UNOS board member, Jim Gleason, gave his remarks at 25:00 minute mark (for 5 minutes) followed by Q&A
> UNOS News event video: https://youtu.be/93E9v5_ULxw
> Pittsburgh Post-Gazette article: http://www.post-gazette.com/…/Heart-do…/stories/201601280012
> TRIBLive article: http://triblive.com/…/admi…/9873113-74/heart-unos-transplant

 

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Click below to access these inspiriting and educational on-line resources:

(Stay tuned for future resources coming each month…)

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Celebration of Life event videos available for viewing:

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Contacts . . .

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